Research
-
The Norris Lab GWS Study
Read more: The Norris Lab GWS StudyThe Norris Lab, located in Charleston, SC, is a research lab that frequently hosts interns who have lived experience with disabling conditions and collaborate to gain perspective and advancements in the areas of Ehlers-Danlos Syndrome (EDS) and cardiovascular disease. Several recently associated gene markers have shown promise for their relation to hEDS. Gene variants in…
-
The HEDGE Study Update
Read more: The HEDGE Study UpdateThe Hypermobile Ehlers-Danlos Genetic Evaluation (HEDGE) study was initiated by The Ehlers-Danlos Society to examine the genes of over 1000 particpants around the world who have hEDS or HSD (Hypermobility Spectrum Disorders). It is the most extensive study involving over 85 counties with an aim to find a genetic cause of hEDS. An October 2025…