Resources

Ehlers Danlos Society https://www.ehlers-danlos.com/

Dysautonomia International https://www.dysautonomiainternational.org

The Mast Cell Disease Society, Inc. https://tmsforacure.org/overview/

National Kidney Foundation https://www.kidney.org

Rare Disease Day https://rarediseaseday.org

National Organization for Rare Diseases https://rarediseases.org

NIH Rare Disease Search Engine https://rarediseases.info.nih.gov/search-result

Rare Diseases at FDA https://fda.gov/patients/rare-diseases-fda

National Human Genome Research Institute https://genome.gov/health/For-Patients-and-Families