Blog Archives
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The Norris Lab GWS Study
Read more: The Norris Lab GWS StudyThe Norris Lab, located in Charleston, SC, is a research lab that frequently hosts interns who have lived experience with disabling conditions and collaborate to gain perspective and advancements in the areas of Ehlers-Danlos Syndrome (EDS) and cardiovascular disease. Several recently associated gene markers have shown promise for their relation to hEDS. Gene variants in…
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The Journey to hEDS
Read more: The Journey to hEDSHypermobile Ehlers-Danlos Syndrome The first time I heard about EDS was when I was getting my POTS work-up from my electrophysiologist. He knew it was co-morbid with POTS and sent me to a renowned geneticist in Dallas, Dr. Wilson. He took a family history. My mother is known to bruise easily, but she is also…
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My Journey to Diagnosis
Read more: My Journey to DiagnosisThe Younger Years I have vague memories during childhood where the signs were there. Abdominal pain starting at 7 years old. Being covered in hives after running through a field at 8 years old. Party tricks with the extra bendy joints. Always feeling tired. Around 13 years old, I came down with mono (also known…