Blog Archives
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The Journey to hEDS
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Hypermobile Ehlers-Danlos Syndrome The first time I heard about EDS was when I was getting my POTS work-up from my electrophysiologist. He knew it was co-morbid with POTS and sent me to a renowned geneticist in Dallas, Dr. Wilson. He took a family history. My mother is known to bruise easily, but she is also…
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My Journey to Diagnosis
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The Younger Years I have vague memories during childhood where the signs were there. Abdominal pain starting at 7 years old. Being covered in hives after running through a field at 8 years old. Party tricks with the extra bendy joints. Always feeling tired. Around 13 years old, I came down with mono (also known…